Monday Scarlett Update:
-We are continuing to pray for healing of our sweet Scarlett and for her ability to cough to present itself as she is weaned off medications.
-So far the reduction of one of the IV sedatives has gone smoothly. It will be reduced at 10 am & should be gone by 10 pm tonight.
-Today morphine will move from IV to through her tube without a reduction in dosage in preparation for trying to wean it again tomorrow.
-they will retape her breathing tube today as it the tape has begun to loosen. They will have to sedate her a little more for this. Her respiratory levels remain steady & she remains on the ventilator as they work to wean her from medications before the trial run without the breathing tube.
-she has no skin breakdown/pressure injuries.
-Her WAT scores (withdrawal) continue to trend down, which is a good thing.
-Her bowel regimen continues to be reduced (which is good). She would be very embarrassed at us sharing this, but it is good news so we are.
-They are monitoring her nasal secretions at her white cell count is up slightly.
-She is getting custom splints from Occupational Therapy to protect her wrist and elbow joints from her muscle contractions during her neurostorming episodes.
Thank you for the continued prayers for our girl. We have a great medical team here, but know that healing for her will come from Jesus. All the glory to God for each miracle we have seen on this journey. Mark 5:41.
This picture is from early in the summer on Silver Dollar City’s Fire in the Hole! She loves SDC!
-We are continuing to pray for healing of our sweet Scarlett and for her ability to cough to present itself as she is weaned off medications.
-So far the reduction of one of the IV sedatives has gone smoothly. It will be reduced at 10 am & should be gone by 10 pm tonight.
-Today morphine will move from IV to through her tube without a reduction in dosage in preparation for trying to wean it again tomorrow.
-they will retape her breathing tube today as it the tape has begun to loosen. They will have to sedate her a little more for this. Her respiratory levels remain steady & she remains on the ventilator as they work to wean her from medications before the trial run without the breathing tube.
-she has no skin breakdown/pressure injuries.
-Her WAT scores (withdrawal) continue to trend down, which is a good thing.
-Her bowel regimen continues to be reduced (which is good). She would be very embarrassed at us sharing this, but it is good news so we are.
-They are monitoring her nasal secretions at her white cell count is up slightly.
-She is getting custom splints from Occupational Therapy to protect her wrist and elbow joints from her muscle contractions during her neurostorming episodes.
Thank you for the continued prayers for our girl. We have a great medical team here, but know that healing for her will come from Jesus. All the glory to God for each miracle we have seen on this journey. Mark 5:41.
This picture is from early in the summer on Silver Dollar City’s Fire in the Hole! She loves SDC!
Monday Scarlett Update:
-We are continuing to pray for healing of our sweet Scarlett and for her ability to cough to present itself as she is weaned off medications.
-So far the reduction of one of the IV sedatives has gone smoothly. It will be reduced at 10 am & should be gone by 10 pm tonight.
-Today morphine will move from IV to through her tube without a reduction in dosage in preparation for trying to wean it again tomorrow.
-they will retape her breathing tube today as it the tape has begun to loosen. They will have to sedate her a little more for this. Her respiratory levels remain steady & she remains on the ventilator as they work to wean her from medications before the trial run without the breathing tube.
-she has no skin breakdown/pressure injuries.
-Her WAT scores (withdrawal) continue to trend down, which is a good thing.
-Her bowel regimen continues to be reduced (which is good). She would be very embarrassed at us sharing this, but it is good news so we are.
-They are monitoring her nasal secretions as her white cell count is up slightly.
-She is getting custom splints from Occupational Therapy to protect her wrist and elbow joints from her muscle contractions during her neurostorming episodes.
Thank you for the continued prayers for our girl. We have a great medical team here, but know that healing for her will come from Jesus. All the glory to God for each miracle we have seen on this journey. Mark 5:41.
This picture is from early in the summer on Silver Dollar City’s Fire in the Hole! She loves SDC!
-We are continuing to pray for healing of our sweet Scarlett and for her ability to cough to present itself as she is weaned off medications.
-So far the reduction of one of the IV sedatives has gone smoothly. It will be reduced at 10 am & should be gone by 10 pm tonight.
-Today morphine will move from IV to through her tube without a reduction in dosage in preparation for trying to wean it again tomorrow.
-they will retape her breathing tube today as it the tape has begun to loosen. They will have to sedate her a little more for this. Her respiratory levels remain steady & she remains on the ventilator as they work to wean her from medications before the trial run without the breathing tube.
-she has no skin breakdown/pressure injuries.
-Her WAT scores (withdrawal) continue to trend down, which is a good thing.
-Her bowel regimen continues to be reduced (which is good). She would be very embarrassed at us sharing this, but it is good news so we are.
-They are monitoring her nasal secretions as her white cell count is up slightly.
-She is getting custom splints from Occupational Therapy to protect her wrist and elbow joints from her muscle contractions during her neurostorming episodes.
Thank you for the continued prayers for our girl. We have a great medical team here, but know that healing for her will come from Jesus. All the glory to God for each miracle we have seen on this journey. Mark 5:41.
This picture is from early in the summer on Silver Dollar City’s Fire in the Hole! She loves SDC!
Good morning.... welcome to services of the Ava church of Christ..... Sunday July 6, 2025....
Doors are open come join us....
Doors are open come join us....
Sunday Scarlett Update:
-they began weaning one of the lighter sedation medicines late last night around 10 pm. Leaving all other medicines alone. The plan is to reduce every 12 hours and see how she tolerates it. So far, so good.
-her ventilator settings are nearly as low as they typically take them for a pediatric ICU patient and she has been doing well on those.
-we continue to pray for her healing as she comes off sedation. We have spoken to her doctors about moving slowly and giving her time to heal. They are very supportive. On the outside, she looks like our perfect beautiful baby. Her body has been healed by Him so remarkably well and we know that He is not done with her. Mark 5:41
-we also pray for her ability to cough and protect her airway. Not a little prayer guys. Like a BIG BOLD PRAYER TO THE ALMIGHTY for Scarlett to be able to easily cough. This will be huge.
-This picture is from Fathers Day just three short weeks ago. Scarlett loves each of these men so very much and they have each been by her side praying for her healing.
-they began weaning one of the lighter sedation medicines late last night around 10 pm. Leaving all other medicines alone. The plan is to reduce every 12 hours and see how she tolerates it. So far, so good.
-her ventilator settings are nearly as low as they typically take them for a pediatric ICU patient and she has been doing well on those.
-we continue to pray for her healing as she comes off sedation. We have spoken to her doctors about moving slowly and giving her time to heal. They are very supportive. On the outside, she looks like our perfect beautiful baby. Her body has been healed by Him so remarkably well and we know that He is not done with her. Mark 5:41
-we also pray for her ability to cough and protect her airway. Not a little prayer guys. Like a BIG BOLD PRAYER TO THE ALMIGHTY for Scarlett to be able to easily cough. This will be huge.
-This picture is from Fathers Day just three short weeks ago. Scarlett loves each of these men so very much and they have each been by her side praying for her healing.
Saturday Scarlett Update:
-the weaning didn’t go as smoothly yesterday as they had hoped, so they ended up reversing course pretty early in the day. They believe she was experiencing withdrawal.
-The team is going to leave things as they are once again. Scarlett remains in stable in the ICU.
-We thought she had some bile coming up yesterday (which did not make sense), but a PH test overnight revealed that it was not. She continues to have regular respiratory treatments.
-The doctors will talk to us later in the day regarding the plan for a trial run without the breathing tube.
-We continue to pray for Scarlett’s healing. We need to see an ability to protect her airway (ability to cough). Mark 5:41.
-the weaning didn’t go as smoothly yesterday as they had hoped, so they ended up reversing course pretty early in the day. They believe she was experiencing withdrawal.
-The team is going to leave things as they are once again. Scarlett remains in stable in the ICU.
-We thought she had some bile coming up yesterday (which did not make sense), but a PH test overnight revealed that it was not. She continues to have regular respiratory treatments.
-The doctors will talk to us later in the day regarding the plan for a trial run without the breathing tube.
-We continue to pray for Scarlett’s healing. We need to see an ability to protect her airway (ability to cough). Mark 5:41.
Independence Day Update on Scarlett:
-They will continue to wean back sedation. This has been a slow process with a couple of steps forward and then a step back. Not necessarily negative, just slow.
-They are adding a medicine today to help with her body tone during neurostorming.
-We are working towards a goal of doing a trial run without the breathing tube. That will not happen today (most likely next week) but we are excited!
-We continue to praise God for each miracle he provides and pray for healing.
-Today’s picture is a throwback to a Fourth of July photo shoot with Whitney Keith! Happy birthday America! Mark 5:41
-They will continue to wean back sedation. This has been a slow process with a couple of steps forward and then a step back. Not necessarily negative, just slow.
-They are adding a medicine today to help with her body tone during neurostorming.
-We are working towards a goal of doing a trial run without the breathing tube. That will not happen today (most likely next week) but we are excited!
-We continue to praise God for each miracle he provides and pray for healing.
-Today’s picture is a throwback to a Fourth of July photo shoot with Whitney Keith! Happy birthday America! Mark 5:41
